And for viewers without direct experience of disability, it may encourage a more thoughtful understanding of what inclusion actually means.
Kaleb’s smile became memorable, but the person behind it is what gives the story lasting significance.
Understanding the Rare Condition That Shaped His Early Life
Osteogenesis imperfecta is frequently described as brittle bone disease, but that simple name only begins to explain its complexity.
The condition is most commonly associated with genetic changes affecting the structure or production of type I collagen, an important component of bones and connective tissues.
Because collagen contributes to the strength and flexibility of bone, disruptions in its production or function may lead to fractures that occur more easily than expected.
The severity varies considerably.
Some individuals experience relatively few fractures and participate in many ordinary physical activities with appropriate precautions.
Others experience repeated fractures, bone deformities, differences in growth, and significant mobility challenges.
Some severe forms can affect breathing and other essential functions.
